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Tools to diagnose Down Syndrome Regression Disorder

A checklist of changes that parents or carers might see in a person with Down syndrome and tools that doctors can use to get more information.
Who is it for?
Family and carers, Professionals
What is it about?
Health topics that matter to us, For professionals
Who made it?
Down Syndrome Australia
When was it made?
It was created
26 years ago
. It was shared here .
Why do we trust it?

Because it was made to help, not for profit.

Learn more about why we trust it and how to check other information.

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Regression means that a person loses skills that they used to have. For example, someone might:

  • forget words that they used to know
  • lose their sense of time
  • not be able to go to the toilet alone anymore
  • need help washing and dressing.

Down Syndrome Australia talked to the families of people with Down syndrome who had these kinds of changes. They made a checklist of common changes. Families and carers who are worried about the person they support can complete the checklist and take it to a General Practitioner (GP).

There is also a list of questions that doctors can ask the parent or carer, and a list of medical tests that doctors can request to get more information.

We trust this resource

We trust this resource because it is:

  • Made to help, not for profit
  • Made by people who know a lot about the topic
  • Made in Australia

We've checked this resource, and you can follow our guide to know if health information is true and right for you.

This resource was made by

Down Syndrome Australia

Down Syndrome Australia is made up of State and Territory associations. These groups provide support, information and resources to people with Down syndrome and their families across Australia.